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Patient-Reported Outcomes

12. Resources

Accounts on the OBSSR e-Learning site enable you to save notes as you read the contents of the site.  Notes are a way for you to save a spot on the site with your own comments and title applied to it.  Think of it as putting a sticky note paper in a book to remember a place and leave a thought or two of your own for later reference.

NLM Logo

gateway.nlm.nih.gov/gw/cmd/

MEDLINE, MEDLINEplus, OLDMEDLINE, PubMed, LOCATORplus, DIRLINE, AIDS Meetings, Health Services Research Meetings, Space Life Sciences Meetings, and Health Services Research Projects.

Mapi Research Institute

www.qolid.org

Through the structured presentation of synthesized, reliable and constantly updated data on PRO instruments, the PROQOLID database aims to: Provide an overview of existing PRO instruments; Provide relevant and updated information on PRO instruments; Facilitate access to the instruments and their developers; Facilitate the choice of an appropriate PRO instrument. Descriptions of 436 instruments. ($$)

OLGA

www.olga-qol.com

The most comprehensive source of information about questionnaires, rating scales and other tools for assessing psychosocial effectiveness in clinical and pharmacoeconomic studies. ($$)

OVID

www.ovid.com

Health and Psychosocial Instruments (HaPI)

Medicine, Nursing, Health Professions, Social Sciences, Education; Over 100,000 surveys, questionnaires, scales, tests, checklists, manuals; CD-ROM or online subscription ($$); Abstracts from leading journals.

Quality Metric

www.qualitymetric.com

Easy, valid, and reliable patient-reported outcome (PRO) measurement.

Whether you require expertise in protocol/study design, information on the most cost-effective method of administering, scoring, interpreting and reporting on PRO Surveys, or simply want to license one of our industry-leading PRO surveys, QualityMetric makes PRO measurement easy and insightful, supporting your efforts to positively impact healthcare. ($)

Metric

www.measurementexperts.org

Measurement Excellence and Training Resource Information Center (METRIC).

Empowering Researchers with Measurement Knowledge. You will find resources to help you with your measurement needs. Find an instrument or learn about the Foundations of Measurement. METRIC is designed to give researchers the resources to measure their best.

Compendium of Quality of Life Instruments

www.wiley.com/legacy/products/
subject/reference/salek_toc.html

The Compendium of Quality of Life Instruments
(5-Volume Set plus CD-ROM) ($$)

Compiled by: Sam Salek

The first ever comprehensive source of original questionnaires and related information for researchers and practitioners in the field of health-related quality of life ...

Reliable one-stop information plus CD-ROM, An all-in-one up-to-date sourcebook that is easy and quick to use, Tried and tested existing Quality of Life Instruments from around the world.

ATS

www.atsqol.org

American Thoracic Society – Quality of Life Resource

The goal of this website is to provide information about quality of life and functional status instruments that have been used in assessing patients with pulmonary disease or critical illness.

Patient-reported Health Instruments Group

phi.uhce.ox.ac.uk

Patient-reported Health Instruments Group (PHIG)
National Centre for Health Outcomes Development (NCHOD)

General information on patient-reported health outcomes and instrument selection, including guidance regarding the selection of appropriate instruments for use in clinical trials, systematic reviews of outcome measures relevant to specific disease and population (demographic) groups.

*($$) indicates fees involved for some

Guide for Reviewing PRO literature

This handout presents selected issues discussed in this Chapter that are specific to PROs that readers might consider when reading the research literature. Select a recent clinical trial from the literature. Apply the criteria in the checklist. Remember that there are no right or wrong answers to many of the questions. Few articles will meet all the criteria listed, and this checklist is simply a guide for reviewing the literature. Based on Chapter 7 of Health Status and Health Policy, Guyatt et al., 2008; Users’ Guides to the Medical Literature: XII. How to Use Articles About Health-related quality of life; MOT measurement criteria and CDC Guide to Evaluation of Community Preventive Services.